Benefits and Risks of Sharing Genomic Information
نویسندگان
چکیده
منابع مشابه
Benefits and Risks of Sharing Genomic Information.
Genetic tests can result in abundant data that must be managed, interpreted, and afforded the appropriate protections (McGuire et al., 2008). Because of the numerous potential uses of these data, ethical use requires engaged and representative governance and oversight. The movement to publish these data in large genomic databases to make it broadly accessible is generally widely supported. It i...
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BACKGROUND Technological advancements are rapidly propelling the field of genome research forward, while lawmakers attempt to keep apace with the risks these advances bear. Balancing normative concerns of maximizing data utility and protecting human subjects, whose privacy is at risk due to the identifiability of DNA data, are central to policy decisions. Research on genome research participant...
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The human genetics community needs robust protocols that enable secure sharing of genomic data from participants in genetic research. Beacons are web servers that answer allele-presence queries--such as "Do you have a genome that has a specific nucleotide (e.g., A) at a specific genomic position (e.g., position 11,272 on chromosome 1)?"--with either "yes" or "no." Here, we show that individuals...
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ژورنال
عنوان ژورنال: Genetic Testing and Molecular Biomarkers
سال: 2015
ISSN: 1945-0265,1945-0257
DOI: 10.1089/gtmb.2015.29008.sjt